Critical Congenital Heart Disease: Where We Are & Where We're GoingPublic Square #04Published March 29, 2017
In February 2017, Baby's First Test and Children's National Medical Center hosted an educational webinar about critical congenital heart disease (CCHD), which affects thousands of babies in the United States each year. The webinar's speakers included Lisa (Hom) Wandler, RN, Esq. from Children's National Heart Institute and Erin Palmer from the 2016 Consumer Task Force on Newborn Screening. Lisa Wandler discussed the evolving science and policies around CCHD since it was added to the Recommended Uniform Screening Panel (RUSP) in 2011. Erin Palmer shared her family's experience with CCHD and her current project as a Consumer Task Force member.
You may watch the full webinar here.
During this webinar, Lisa Wandler discussed educational priorities for CCHD, including reaching underserved populations and educating pediatritians and obstetricians on the latest research and best practices around CCHD screening. Erin Palmer also discussed the importance of education and follow-up around CCHD among midwives.
In your experience, what do you see as educational needs for CCHD screening and follow-up?