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About Us Community Corner

At Baby's First Test, we know that newborn screening is more than just a test. There is a whole community of people that make sure this process runs everyday. We will highlight these different partners here in our Community Corner. Check back here to meet our partners in the newborn screening community. Do you want to have your organization highlighted or know of another important group in newborn screening? Please reach out to Natasha Bonhomme, Program Director at [email protected] to discuss being included.

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Community Corner Partners

Mountain States Regional Genetics Collaborative

CDC 24/7: Saving Lives. Protecting People.
The Corbin Story helps educate others about pulse-oximetry as a part of newborn screening.

The Developing Families Center promotes the empowerment of low-income families through the collaboration of nonprofit service providers.

Intermountain PKU and Allied Disorders Association.
We connect families who have been affected by non-ketotic hyperglycinemia so that no one feels alone in dealing with this horrible disorder.
Taking one baby step at a time to go from processed to pur(er) with the food we eat, while navigating the maze of metabolic disorders!.
HRSA is the primary Federal agency for improving access to health care services for people who are uninsured, isolated, or medically vulnerable.
The ACMG provides education, resources and a voice for the medical genetics profession.
To educate others of the importance of newborn screening so that no other child dies, or is disabled from, a treatable disorder.
The Heart Smart video series will include educational videos for healthcare providers, families, and advocates for critical congenital heart disease newborn screening.
Educating, communicating, and collaborating with parents, clinicians and the community to help babies. Rattles Up!
The Maternal and Child Health Bureau has the primary responsibility for promoting and improving the health of our nation's women, children, and families.
The Association of Maternal and Child Health Programs
Connecting consumers 
to smart services.
The National Center for Medical Home Implementation works to ensure that EVERY child and youth has access to a medical home.
The American Academy of Pediatrics is committed to attain optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
The FOD Family Support Groupsupports families around the world living with rare metabolic Fatty Oxidation Disorders.
The Newborn Coalition leverages health IT/technology innovation to impact policies and programs that improve outcomes for the newest, most vulnerable citizens.
HealthyChildren.org is the official parenting Web site of the American Academy of Pediatrics.
1in100.org advocates for early detection, research and treatments that advance the care of pediatric heart patients - and connect families.
The Association of Public Health Laboratories works to strengthen laboratories serving the public's health in the US and globally.
The New England Genetics Collaborative Promotes and improves the health and social well-being of those with inherited conditions.
American Public Health Association is the leading professional association that promotes and protects the health of all people.
The National Adrenal Diseases Foundation Provides information & support to individuals who have Addison's disease, as well as other diseases of the adrenal glands.
The Organic Acidemia AssociationEmpowers families and health care professionals with knowledge in organic acidemia metabolic disorders.
SACHDNC works to reduce morbidity and mortality in newborns and children who have or are at risk for heritable disorders.

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