Learn from other families, in their own words, what their journey has been like after a diagnosis. Their stories not only give us valuable insight into how they manage conditions, but also reaffirm that none of us are alone. You can also visit the Baby's First Test Youtube channel for family stories and guides to support your family through the newborn screening process. Do you have a newborn screening story you would like to share?
Mike shares the story of his two sons. After a six-month diagnostic odyssey, Mike's sons were finally diagnosed with Hunter Syndrome. Had they been diagnosed as newborns, their condition could have been much more manageable.