Programs and Policy Baby's First Test Webinars

Baby’s First Test  webinars highlight newborn screening activities, provide updates on Baby’s First Test programs, and present information on relevant topics being discussed in the newborn screening community. These webinars give audiences the opportunity to learn about advocacy, educational, and outreach efforts that are designed and implemented by the newborn screening community.

Upcoming Webinar:

Baby's First Test: 5 Years of a National Educational Initiative
Tuesday, December 6, 2016 1:00PM-2:00PM EST

To register for this webinar, please click here.

Past Webinars:

January 22, 2014   

Newborn Screening Rates In The Homebirth Community

Although the number of midwife deliveries is small relative to the birth cohort in Michigan, they often occur in the Amish and Mennonite populations. Both of these populations have a higher incidence of several heritable disorders including phenylketonuria, maple syrup urine disease and glutaric acidemia type I. Compared to the overall newborn screening rate of 99.6% in the general population of Michigan births, approximately 65% of homebirths attended by midwives receive a newborn screen. When a screen is obtained for a homebirth, the screen is more likely to be collected late (after 36 hours of life) and slow to arrive in the state laboratory for testing (more than 4 days after specimen collection) compared to hospital births.
On Wednesday, January 22nd, the Michigan Department of Community Health (MDCH) highlighted their quality improvement project, Improving Newborn Screening Rates within the Michigan Homebirth Community. This project was designed to increase the efficiency of the newborn screening process for the number of infants born at home. Presenters shared the goals, methodologies, key findings, lessons learned, and applicability of the program.

Janice Bach, MS, CGC |  Valarie Newton, MS, RN, MSN Candidate |  Lois Turbett, MS, RN

November 13, 2013

Educating African American Mothers on the Importance of Newborn Screening

According to the 2011 Commonwealth Fund’s Child Health Scorecard, Georgia is ranked 43rd for child health among the states and the District of Columbia. Regarding genetic disorders, birth defects, and developmental disabilities, many disparities exist and infant mortality is high. The combination of education and resources to families and promoting clinical linkages, particularly for African American communities, is of critical importance to ensure that babies and toddlers have the best start at life. On Wednesday, November 13, 2013, the Table for Two Foundation shared insights learned from the development of culturally appropriate educational materials on newborn screening for African American mothers and families. Presenters discussed lessons learned, key findings, barriers to engagement, recommendations for dissemination, and educational opportunities for minority audiences.

Monica L. Ponder, MS, MSPH |  Sojourner Marable Grimmett, MA |  Karla Scipio, RN, BSN

October 2, 2013

Critical Congenital Heart Disease (CCHD) Screening and the Heart Smart, Expanding Borders Series

Screening for Critical Congenital Heart Disease (CCHD) in newborns through the use of pulse oximetry has spread rapidly across the United States. Currently, over 32 states require newborns to be screened for CCHD using pulse oximetry prior to being discharged from their birth hospital. On Wednesday, October 2, 2013, Baby’s First Test hosted a webinar to highlight the work that Children’s National Medical Center (CNMC) completed in partnership with Baby’s First Test to champion, develop, and disseminate educational resources on CCHD to both parents and healthcare providers. A review of lessons learned throughout the process and strategies for implementation, both nationally and internationally, was also discussed.

Lisa Hom
, RN, Esq.

September 18, 2013

Connecting the Dots through Newborn Screening
Powerpoint - Prezi Presentation

The rapid expansion of newborn screening (NBS) has increased demands upon Neonatal Intensive-Care Unit (NICU) nursing staff to know and be familiar with the NBS process. In addition, there is a great need for nurses to be able to provide easily understandable NBS information to families of NICU babies. On Wednesday, September 18, 2013, Baby’s First Test hosted a webinar to highlight how the NICU at Le Bonheur Children’s Hospital and the Department of Pediatrics in the Division of Medical Genetics at the University of Tennessee Health Science Center developed and disseminated innovative newborn screening (NBS) educational modules for NICU nurses in tertiary care facilities and for the families of NICU patients.
Stacy Hines-Dowell
, DNP, APNG, FNP-BC |  Jewell C. Ward, MD, PhD, PhD | Julie Bousson, RN, BSN

July 17, 2013

Putting Babies First: A Video Project to Discuss Blood-Spot Collection in Iowa

Health professionals often face real challenges while attempting to collect the specimens used in newborn screening. This can compromise the integrity of the specimens, which can lead to invalid test results and possible delays in detection and treatment for affected babies. On Wednesday, July 17, 2013, Baby’s First Test hosted a webinar to highlight how the State Hygienic Laboratory in Iowa incorporated different communication strategies to address the most common issues raised by health professionals performing the specimen collections.
Erin O’Gara
M.S., Ph.D. candidate | Mike Ramirez | Carol Johnson

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